NC Lyme Foundation: http://www.nclyme.org
Watch the documentary Under Our Skin: http://www.underourskin.com/
Also check out the related blog: http://www.underourskin.com/news.html
There are more links on my friend Fran's page to useful sites: http://www.helphealfran.org/
http://www.lymefriends.org/ is full of helpful advice too.
The Etiquette of Illness is a useful book for friends and family of anyone with a serious illness.