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22 March 2010 @ 06:53 pm
Heartfelt Plea  
I know I bitch and moan about whatever chronic pain and fatigue I deal with, but I am the picture of health compared to some people and I only have to care for myself.

Imagine for a moment that you and your whole family have a serious disease. Or don't imagine, just read this account (which I am voluntarily passing along):


Jeanne Marie:

Robert and I are overwhelmed by his potential lyme diagnosis and health issues, my aggressive treatment and the treatment for the kids.

For those of you who don't know, we all have Lyme Disease. We believe it started with a bite in 1985 with me, and crossed the placenta with the kids because I was never treated. For those of you who think Lyme is just a simple illness on the back of a can of bug spray, think about a bunch of infectious diseases -- untreated in my body for 24 years. Not so simple.

With the pressures being what they are physically, mentally, emotionally and financially, we need help.

We have the opportunity to send the kids to be with their Grandparents and/or my brother for spring break. I don't know how we will get through that week without sending them away (I never thought I would be THAT parent), so we need help.

Thanks to my friend Becky, and subsequently Adelheid, Melissa, Suzanne, Ed and Mary Jean, I'm going to ask. Yes, if all of my FB friends chipped in $10, we would have money for the trip AND medical costs, but at this point, we would be thrilled to be able to send our kids away.

Seriously. I really did type that. I love my kids. And having 4 sick people in one house is really hard.

So, if you can chip in, any amount at all, we would LOVE it. We can only take money from bank cards and paypal accounts, our little paypal account won't take credit cards (and you really don't want to pay interest on a $5 donation).

Help if you can. And I don't want to see any donations by folks with Lyme who are just as sick and broke as we are. Seriously. And if you can't help right now, there will be opportunities in the future. We are quickly learning that without help, we won't make it. Not with all 4 of us sick.

Thank you to my friends who give me courage to ask.

Here is the link:


Tapati: Now this lady, a friend of a friend, hasn't asked strangers to pitch in although she agreed that friends could pass this along. It appears that concerned friends suggested she write this. Like many of us women, I suspect she normally wouldn't ask for help. It's a measure of how hard hit her family is by this disease that she has had to push past that reluctance and do so. We all know that a dollar here and a dollar there can add up. So if (and only if) you can spare a little bit and wish to do so, please go to the above link. No pressure--I know that many of us are dealing with financial strain and some of us could use help too. I was just touched by this family and wanted to do my part to pass their story along.
Ms. F.goodbadgirl on March 23rd, 2010 03:29 am (UTC)
Who or Whatever created your heart wove it with threads of gold and enormous amounts of compassion. And the rest of us are better for it, for you. xoxo
Tapatitapati on March 23rd, 2010 04:24 am (UTC)
Oh I wish I could say I was that saintly. But I've had a deathly ill child and been overwhelmed and needed respite care myself. So my empathy comes from experience. People helped me and I'm just doing my part in turn. These are obviously good people who do their part too. That's how we all survive. :)

I hope you're having a good day, treatment-wise, or at least less awful. {{{hugs}}}
deneliandenelian on March 23rd, 2010 04:51 am (UTC)
that boat, i am in. well, not that *specific* boat - i don't have Lyme's

but the save_liz comm was set up for me [a bit over a thousand dollars - enough for 3 months insurance, a month a meds, part of next months meds] so it *can* - it *DOES* - work
Tapatitapati on March 24th, 2010 01:31 am (UTC)
I'm glad to hear that it helped and sorry that you needed it. {{{hugs}}}
deneliandenelian on March 24th, 2010 07:47 am (UTC)
erm - LJ ate a line!

the last line [which isn't there at all!] should say something like "this is ok to signal boost, right? i can throw it up on the Comm and it'll be ok to do so?"
Tapatitapati on March 26th, 2010 03:45 am (UTC)
Oh sure. :)
deneliandenelian on March 26th, 2010 10:41 pm (UTC)
great - i'll do so now!
deneliandenelian on March 28th, 2010 12:21 am (UTC)
so... i wrote it up on the Comm...

and never hit "post". sigh. i can be silly. i open the computer today, going thru open tabs, FIND the unposted post - it's finally posted. sorry!
Tapatitapati on March 31st, 2010 01:52 pm (UTC)
Thanks for doing that!

I have to look at my own resistance to getting a paypal button...why am I so happy to do for others what I won't do for myself? Sigh.
deneliandenelian on April 1st, 2010 04:54 am (UTC)
in my case, i feel guilty if i ask for myself. but asking for someone else makes me feel good.