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19 March 2008 @ 04:34 pm
Deadly Misinformation  
Last night I was shocked to hear a statement that in the Tuskegee experiment, black men were given syphilis by scientists in a government experiment. That's not how it happened! The men had syphilis and at the time the study began, the only treatments available were very toxic and even harmful. The study was meant to address whether or not the treatments were worse than the actual disease (something we often wonder these days).

The crime, the unforgivable, heinous crime, was that when penicillin became available as a standard, successful treatment for the disease, the scientists withheld it and any knowledge of it from the men in the study. It only ended when the whistle was blown in 1972.

The distinction is important because this experiment has forever affected the ways in which African American people view the government and health care. Even now a study has attempted to figure out if memory of this experiment is what prevents more African Americans from participating in medical studies. Let's not make it even worse, or give fuel to the "government created AIDS" conspiracy theory by spreading misinformation!

I wish I had caught the name of the person making the statement so I could write in. I was bouncing back and forth between stations, watching coverage of the Obama speech, so I don't know who it was. It was not corrected on air, either.

http://en.wikipedia.org/wiki/Tuskegee_Study_of_Untreated_Syphilis_in_the_Negro_Male

I first read about this in the book Bad Blood: The Tuskegee Syphilis Experiment, by James H. Jones, New York: Free Press, 1981 & 1993.

ETA: The mistake was made by Ed Gordon, host of "Our World," as a guest on Hardball with Chris Matthews on 3-19-08. I have written to Mr. Matthews and Mr. Gordon to correct the record.