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22 May 2013 @ 08:26 pm
Update: I am revising my memoir entries at another blog I have on wordpress: http://tapati.wordpress.com/

All of my memoir posts and other original posts are copyrighted. You are welcome to provide a link to my posts with a short excerpt to catch someone's attention, just as I do with others' material, but please don't reproduce entire posts. Thank you!

If you have followed the link from my guest posts on the No Longer Quivering blog, you may be interested in my other memoir entries. Please keep in mind that these are rough drafts intended to establish the sequence of events and reveal some of the themes of my writing. The finished product may look very different. I am also not putting everything online for obvious reasons.

If you find my memoir posts interesting, please consider supporting my writing efforts by using the Paypal donation button located on the right of my journal pages. Thank you so much.

22 May 2023 @ 02:22 pm
City lights can be structured to avoid the haze of glare that obscures our stars. Learn more.

27 September 2016 @ 05:52 am
“We must always take sides. Neutrality helps the oppressor, never the victim. Silence encourages the tormentor, never the tormented.” Wiesel
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As an editor I’ve launched investigations into her business dealings, her fundraising, her foundation and her marriage. As a reporter my stories stretch back to Whitewater. I’m not a favorite in Hillaryland. That makes what I want to say next surprising.

Hillary Clinton is fundamentally honest and trustworthy.

The yardsticks I use for measuring a politician’s honesty are pretty simple. Ever since I was an investigative reporter covering the nexus of money and politics, I’ve looked for connections between money (including campaign donations, loans, Super Pac funds, speaking fees, foundation ties) and official actions. I’m on the lookout for lies, scrutinizing statements candidates make in the heat of an election.

The connection between money and action is often fuzzy. Many investigative articles about Clinton end up “raising serious questions” about “potential” conflicts of interest or lapses in her judgment. Of course, she should be held accountable. It was bad judgment, as she has said, to use a private email server. It was colossally stupid to take those hefty speaking fees, but not corrupt. There are no instances I know of where Clinton was doing the bidding of a donor or benefactor.

As for her statements on issues, Politifact, a Pulitzer prize-winning fact-checking organization, gives Clinton the best truth-telling record of any of the 2016 presidential candidates. She beats Sanders and Kasich and crushes Cruz and Trump, who has the biggest “pants on fire” rating and has told whoppers about basic economics that are embarrassing for anyone aiming to be president. (He falsely claimed GDP has dropped the last two quarters and claimed the national unemployment rate was as high as 35%).

As I post this, however, several scandals and evidence of fraud have been or are being uncovered concerning Donald Trump. Perhaps he assumes Hillary has behaved the way he would in her place.
05 July 2016 @ 07:28 pm
How welfare reform in the 90s only served to increase poverty: http://nyti.ms/1UfM26H

"Recent research finds that because of welfare reform, roughly three million American children live in households with incomes of less than $2 per person per day, a global metric of extreme poverty. That’s one American child in 25. They would be counted as extremely poor if they lived in Africa, and they are our neighbors in the most powerful nation in the world."
05 June 2016 @ 07:07 am
Years ago I took a moment to reflect on what writing about Mahasraya was like, having to capture how I felt and thought about him in the past versus my more mature understanding as I recovered from the abuse and gained the perspective of greater life experience. Here is the link to that post:

05 June 2016 @ 06:50 am
I found out a few days ago that my first husband died of a blood clot on May 31st. Apparently he had a complication from a surgery and returned to the hospital and was in critical condition before he died. He was 4 years older than I am, born on September 26, 1954.

Given my own health issues I didn't expect to outlive him so I have a lot of mixed feelings. I am feeling my mortality and processing the fact that he will never make amends to my daughter or even validate the truth of her account of abuse. I know there are people who still love him and are grieving, and I feel for them. I have also had flashbacks of the abuse I experienced. He had such an impact on my life, good and bad, so his passing is a huge event even if I haven't been in touch with him for years.

It reminds me that I have to finish the memoir, which I had put on hold mainly because I still have to write about my childhood and that's particularly difficult. But I want to put it all behind me, the writing, the re-living, all of it.

I find myself playing Alive by Sia over and over these past few days.

05 June 2016 @ 06:40 am
I've often thought of the effort I put into coordinating my medical care as being like a job. I didn't really think about it as unpaid labor that keeps the medical system going until I read this article: Unpaid, stressed, and confused: patients are the health care system's free labor.

I want this to go viral because while I'm a fairly well educated person and more familiar than average with medical terminology, I have to imagine that other patients who have to communicate the diagnosis and comments of specialist A to specialists B, C and maybe D, E, + F have a harder time. I can see how things fall through the cracks and impact patient care and outcomes when exhausted patients in a lot of pain must try to call pharmacists, specialists and several docs or other providers and miscommunication interferes--or they get worn out and give up on getting a medication or procedure or therapy they needed. Sometimes I get tired and take a few months where I do nothing but refill prescriptions and don't bother with follow up appointments or scheduling PT or tests or anything but the barest maintenance. I know I'm not alone. I've often wished I had a secretary to track things and make calls. Sure, if you're young and healthy this isn't an issue that concerns you. For all of your chronically ill (or even acutely ill) friends, family and acquaintances, this is a huge issue. Please pass it on! We need to be aware of it before the people in the health care system will even begin to think of solutions.


I write a lot about health care for my job here at Vox, and have spent the past seven years covering and explaining the American health care system. But there was something I didn't understand about American health care until this experience.

It is the considerable burden our fragmented system puts on patients to coordinate their own care.

I'm not talking about the work of managing one's health, the work that diabetics do to monitor their blood sugar or the healthy eating choices a doctor might recommend for an overweight patient. This can be a significant burden in its own right.

What I didn't understand was the burden patients face in managing the health care system: a massive web of doctors, insurers, pharmacies, and other siloed actors that seem intent on not talking with one another. That unenviable task gets left to the patient, the secret glue that holds the system together.

For me, this feels like a part-time job where the pay is lousy, the hours inconvenient, and the stakes incredibly high. It's up to me to ferry medical records between different providers, to track down a pharmacy that can fill my prescription, and to talk to my insurance when a treatment gets denied to find out why.

I'm not alone.

"Every three months, I just know I'm going to lose a few days of my life," says Aaron Carroll. He's a pediatrician at Indiana University who directs the medical school's Center for Health Policy and Professionalism Research, and who also writes about health care at the New York Times's Upshot.

..."Basically I call the pharmacy, and tell them I'm out of medication," he says. "And sometimes they'll call my doctor for a prescription, and sometimes they won't. So I call the doctor's office to say, 'Hey, I'm out of meds, either the pharmacy will call you or you need to call them.'"

Carroll told me he almost always runs out of his medication early and ends up rationing pills because something goes wrong — a lab test goes missing, a prescription doesn't get transferred. And he's a physician. What about the rest of us?
I keep reading about studies indicating that black people--including children--are not treated properly for pain because doctors and other hospital personnel mistakenly think they don't feel pain in the same way as white people. I have wondered whether this bias is sufficiently addressed in medical school.

Then I read this: The Patient Called Me 'Colored Girl.' The Doctor Training Me Said Nothing.


Medicine struggles with a chronic disease: racism.

Medical schools try to combat this disease with diversity initiatives and training in unconscious bias and cultural sensitivity. I’m about to graduate from the University of Virginia School of Medicine, so I’ve been through such programs.

They’re not enough.

Every one of us needs to own the principles that protect us and our patients from racism and bias. That means learning to see prejudice and speaking up against it. But that is far, far easier said than done.

Again and again during my four years of training, I encountered racism and ignorance, directed either at patients or at me and other students of color. Yet it was very hard for me to speak up, even politely, because as a student, I felt I had no authority — and didn’t want to seem confrontational to senior physicians who would be writing my evaluations.

These situations made me worry for our future: How can medical professionals address the needs of a rapidly diversifying population, when we cannot address prejudice within our own community? </blockquote>

See also:

Gender bias https://psmag.com/is-medicine-s-gender-bias-killing-young-women-4cab6946ab5c#.pxhno9uqz and http://www.theatlantic.com/health/archive/2015/10/emergency-room-wait-times-sexism/410515/?utm_source=SFFB

Anti-fat bias and misdiagnosis: http://www.prevention.com/health/medical-fat-shaming

More about racial bias including pain treatment and medical school misinformation:

https://www.statnews.com/2016/03/10/medical-schools-teaching-race/ "Medical students looking to score high on their board exams sometimes get a bit of uncomfortable advice: Embrace racial stereotypes.

"You see ‘African American,’ automatically just circle ‘sickle cell,’” said Nermine Abdelwahab, a first-year student at the University of Minnesota Medical School, recounting tips she’s heard from older classmates describing the “sad reality” of the tests.


African Americans are routinely under-treated for their pain compared with whites, according to research. A study released Monday sheds some disturbing light on why that might be the case.

Researchers at the University of Virginia quizzed white medical students and residents to see how many believed inaccurate and at times "fantastical" differences about the two races -- for example, that blacks have less sensitive nerve endings than whites or that black people's blood coagulates more quickly. They found that fully half thought at least one of the false statements presented was possibly, probably or definitely true.

Moreover, those who held false beliefs often rated black patients' pain as lower than that of white patients and made less appropriate recommendations about how they should be treated.


Black children with acute appendicitis -- a clearly painful emergency -- are less likely than white children to get painkillers in the emergency room, researchers reported Monday.

And nearly as troubling, only about half of any of the kids got painkillers, even though they're strongly recommended in cases of appendicitis, the researchers found.
01 March 2016 @ 04:45 pm
Her experience is so similar to mine, right down to being called a liar.